Working together for research into fragile X syndrome and related conditions. The eHub is being run by the Patrick Wild Centre at the University of Edinburgh. The purpose is to collect detailed background and clinical information about fragile X syndrome, and those who carry the premutation for the gene.
Anyone who is aged 16 and over and can provide consent for themselves, regardless of their fragile X mutation status.
You will be asked:
Unless explicitly stated otherwise, all material is copyright © The University of Edinburgh 2024. All rights reserved.